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Still Clueless

Hi guys

It’s me OJ, back again.

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Hi guys!

Since Mummy’s last blog not much has happened…and I’m still not ready to go home…

I had more membrane put on my eyes as they weren’t healing as quick as the eye doctors had hoped.  They were hoping to remove half of the stitches from my cornea transplant but the graft hadn’t taken so they’re leaving it a few more weeks.  The silly contact lenses keep coming out so the eye people have to keep coming back and upsetting me.  My eyes were getting really dry overnight so now I’m having drops every two hours overnight and now my eyes feel much better in the morning.

My stoma has still been being naughty and that’s what’s keeping me in hospital.  The doctors don’t really know why,  it’s not infection and it’s not rejection so they’re scratching their heads!  It could be one of my medicines so they’re going to stop that and see and if it’s not that then I’ll have to have another endoscopy.

I’m on PN for 20 hours a day so this means I can’t really leave the ward although me and Mummy managed to escape to Ronald Mcdonald House yesterday for two hours.  I was so happy to go in my pushchair and me and Mummy played on the bed and had cuddles. 

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I really want to go home now as I’m getting bored in hospital in my silly, small cubicle.  I’m getting much stronger and enjoying lots of playing and standing up with help.  It’s a bit hard as Mummy and Daddy have to move my cot every time I want to play on the floor, but I enjoy it.  I’m making lots of new noises too and like shouting at people when they come in!  Last week I got a drum so I like bashing that.   Heather, the lovely lady who cleans my room everyday got it for me as she knows I like bashing toys.

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Me and my drum!

In other news, a little girl who was on the ward sadly went to a hospice last weekend as her GVHD had flared so badly that there was nothing more the doctors could do for her and she lost her battle last week.  We had GVHD at the same time and the opthamologists said we had the worst GVHD eyes in the country so it’s very sad that she’s not managed to fight it.  Ella used to play with her brother and sister and they were a lovely family so we are thinking of them.

Well that’s it for now!  I’m off to rest,  ready for another day of playing!

Love

Oliver
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"Quick Mummy!"

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New Year, Still Here

Hi guys

Well I’m still here in Birmingham and have no idea when I’ll get to go home.

The good news is that Santa did visit but I was a very grumpy boy on Christmas Day from the steroids and didn’t even want to open my presents.  Luckily I started to cheer up the following day before Mummy phoned Santa to tell him to take my presents back.  I really hope I get to spend Christmas at home next year and so do the rest of my family! 

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Me being a Christmas day grump

I’ve had a good week though and was allowed to have a few afternoons over at Ronald Mcdonald House with Mummy, Daddy and Ella which was fun.  I also had some nice naps there as it’s nice and quiet (when Ella sshhes that is!).  My eyes are doing well and I’ve been opening them more and I try and reach everything I can see.

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Playing with my sis at Ronald Mcdonald House

I also had a big achievement and ate some banana! Mummy videoed it to show Daddy and the next day I had some more!  I’ve also tried some jelly and made Nanny cry a happy tear because she was so pleased!

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Look at me with my carrot!

Sadly my stoma losses are still high and the doctors don’t really know why! Yesterday I started a 3 day course of immunoglobulins to try and improve the immunity of my gut and on Wednesday I’m going to have an endoscopy. Hopefully the immunoglobulins will work or the endoscopy will explain why my losses are so high so I can get better and home. 

I’ve had enough of being here now and so have Mummy and Daddy.  Daddy and Ella have just gone home today because Ella has school tomorrow so it’s just me and Mummy now!  Mummy and Daddy surprised Ella and took her to see Jack and The Beanstalk at Birmingham Hippodrome on New Years Eve.  They all had a great time and Ella showed me her programme when she got back.  A big thank you to Birmingham Hippodrome for helping arrange tickets for us.

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Daddy and Ella at the panto

That’s all for now

Oliver
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