Back On Ward 8

Hi everyone

It’s been a while since I updated you, I’ve been too busy sleeping!

image

Smily boy

I finally got off the ventilator and back on ward 8 about 3 weeks ago and quickly got off the oxygen.  I’m also on overnight feeds now and have two bolus feeds of a whopping 150ml in an hour.  I’m still having weekly ECP as the lovely ladies from Rotherham have been coming down to treay me.  Me and Mummy got to meet Sarah-Jane Marsh the CEO of the hospital and the Chief Medical Director the other week who knew all about me and now realise how important ECP is to me.

The downside is that my eyes are still really sore from the GVHD.  The opthalmologists have been keeping a close eye (pun intended) on me.  Last week my left eye was pretty much healed and my right eye was still damaged,  but yesterday I saw the opthalmologist again and my left eye has deteriorated again.  Mummy and Daddy now know why I’ve been so grumpy and sleepy for the last few days.
My eyes are so sensitive that I can barely open my eyes and so Mummy and Daddy have to sit in the dark and I have to wear sunglasses if I go out.  It’s great when I see the opthalmologist as they put some magic drops in my eyes and I can instantly open my eyes and see without it hurting and for a short time I’m happy Oliver again…they wear off too quick though :evil:.

image

Enjoying some fresh air

Yes, you read that right,  I can go out now!  Most days I go back to Ronald Mcdonald House for a few hours in the afternoon…where I mostly sleep! I’ve been on a few walks too but because I have such a weak immune system I can’t go anywhere busy which means Mummy can’t go shopping (much to Daddy’s delight).

image

Having my first cuddle in a very long time with my sister

On Sunday it was Daddy’s birthday and I was allowed out for most of the day so we all had a birthday lunch for Daddy at Ronald Mcdonald House with Nanny and Grandad and my silly big sister Ella. 

image

My Daddy's birthday lunch

That’s about it for now, I’ve got to wait and hope my eyes get better and also get my blood pressure under control.  I want to be home for Christmas!

Lots of love

Oliver
X

image

Advertisements

4 thoughts on “Back On Ward 8

  1. We are so pleased to see Oliver looking so well. Oliver is such a little fighter and I believe that this is mostly due to his loving family helping him along the way.
    Love to you all. Anita and Mesut

  2. so glad to see your feeling better, we are 8 wks post multivisceral with gvhd too, the rash is a pain! big hugs mr, I hope you can get back home soon. kim & poppy x

  3. Our thoughts are with you all and especially Oliver.
    Get well soon little soldier.
    Love from Auntie Neeta and Uncle Mesut. X X X X

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s