Phew, what a busy couple of weeks I’ve had! I’ve left my friends on Ward 2, got a new liver and bowel but I’m now back on Ward 8 where my journey at Birmingham Children’s Hospital began!
I’m feeling so much better now I’ve had my operation but I was pretty cross at first because I had to have a horrible ventilator to help me breathe for the first 9 days, then they gave me a horrible oxygen mask. Finally I had some nasal prongs to help my lungs but I soon showed the doctors and nurses I could do it by myself and they took them out.
My tummy is now fully closed and I only had to go back to theatre twice to have it closed and my tummy is now healing nicely and I can sit up again now, which I like as I like being nosey! My lovely surgeon Mr Shariff has been popping in to check on me lots and he said he’s my friend! He’s my friend because he’s made me better! So many doctors come and see me to check I’m doing ok and I’m starting to realise that they don’t want to hurt me! I have to have stoma biopsies to check for rejection and lots of blood tests too but they don’t hurt .
On Wednesday I moved out of intensive care to HDU on Ward 8. It’s great to have my own room again as it’s lovely and quiet…and I get to watch Cbeebies! After two days though the nurses decided I can go in a normal cubicle and I got my old Ward 8 room back!
All the doctors are really pleased with me and once Mummy and Daddy have learnt how to give me all my medicines I can come home! Mummy and Daddy have told the nurses I need to get home for Ella’s birthday and then we can have a joint birthday party! This home place sounds really good and Mummy and Daddy are promising me a good bedroom!
I’m on loads of milk now, 35 ml per hour and that means that yesterday my PN was turned off, for hopefully the final time! The doctor said the next step will be to reduce my time on continuous feeds, and then Mummy and Daddy can take me for a walk outside! He said something about cars and sky, but I can’t really remember what they are! I can’t go to any busy indoor places though because my immune system is too weak and there’s lots of nasty germs about, but that’s OK and Mummy and Daddy and Ella are planning lots of picnics this summer!
That’s all for now!