On The List

Hi everyone

After last week’s depressing post from my Mummy I thought I’d better take the reins this week!

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I’m now officially on the transplant waiting list so I’m trying to stay as well as possible while I wait.  My billarubin has dropped a bit so I’m doing the best I can!  I’m also gaining weight well thanks to my PN and am over 8kg now.  The doctor’s have been trying to reduce my PN but my silly blood sugars keep dropping!

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Having some tummy time

I’m still on yucky modular feeds through my NG tube and I can only tolerate 4ml an hour.  Yesterday I tried some Banana Delight though and it was really yummy.   I did have a sore bottom but thanks to some magic Ilex cream my bottom is now better so hopefully I might start to be able to manage a bit more feed.

Daddy is back to work so I won’t see him for two days.  I love my Daddy lots, he makes me smile!  Mummy’s good fun too and I like chatting to her.  I’ve learnt to shout now so I can try and compete with my chatterbox big sister!  I’m also getting better at sitting up and can nearly manage it by myself!

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Me and Mummy's selfie

I think that’s about all my news for this week!

Oliver
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