Back To The Motherland


Me and my scalp cannula

Hi everybody

I’m writing this from the Children’s Intensive Care Unit because today I have had my 3rd broviac line so have been back to the theatre again! My Mummy came down to theatre with me today and gave me cuddles until it was time for me to go in. I have been a very brave boy and I’m just resting here before I go back to Ward 28.  I need to have some more blood first which I think will be my 12th transfusion… I’m a little vampire really!  Hopefully my TPN will be restarted later and even better, milk!


Gowned up ready for theatre

Yesterday I had an ultrasound on my liver because the doctors are a bit worried that my jaundice is not improving and that I look yellow.  So after 4 months in Leicester I am going back to where I was born, Birmingham.   This time though I will be going to Birmingham Children’s Hospital where they have a special liver unit that can keep an eye on me and hopefully make my liver better.  They also have a really good short bowel unit so they can monitor me there. 

I’m going to miss being on Ward 28 as I’ve made friends with lots of the nurses and especially Emma the play specialist. I might be back to Leicester yet though as Dr Patwardhan, the surgeon who saved my life, is keen to finish fixing my tummy!

That’s all for now.

Lots of love




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