Making Plans

Hello everyone and a massive thank you for sharing and reading my blog.  We’ve now had almost 2000 views!!

Oliver has now settled in well on the children’s ward and becoming more alert and awake during the day…although he’s still a bit of a night owl.
Oliver’s big sister Ella visited on Saturday and loved the playroom on the ward and being able to play with Oliver as he was wide awake!

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The consultant visited us on Friday and the plan is to continue to increase Oliver’s feeds providing he tolerates them and to slowly increase the time he spends off TPN.  Oliver’s feeds have now gone up to 7.5ml 3 hourly.
Oliver is displaying signs of jaundice as the TPN affects the liver so this needs monitoring.  The plan remains for Oliver’s stoma reversal to take place around Christmas time so we’ve set ourselves a new target to have Oliver home by which is Easter. (Sigh!)

Our latest drama is leaking stoma bags and we had to change Oliver 3 times yesterday! Oliver showed his impressive tummy muscles off by managing to spray poo into the air mid change too, it was like a fountain! Cue a bed sheet change too.

Unfortunately I can’t visit Oliver today as following the virus I had last week all my joints have become badly affected and I can’t move around very well and ended up at the local hospital at 4am as was in agony!  I’m sure I spend my whole life in hospital!  I’ve never suffered like this before and its very frustrating but hoping rest will help and I can be back with him tomorrow.

Please continue to read and share my blog. Oliver’s currently thinking of inspiration for his next instalment!

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3 thoughts on “Making Plans

  1. Hope you are well soon. Aww love the pic of Oliver and Ella playing 🙂

    Gemma was very yellow with the TPN and they changed her lipids to something kinder on the liver even though more expensive when she moved to the children’s hospital. She was also put on a medicine called urso that helps clear jaundice.

    It is great getting time off TPN, so much less wires for cuddling and wandering the room 🙂

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